I have been going for weekly tests every Thursday now, and I am happy to report my shiny new kidney is working beautifully. My creatinine clearance is 92 at present, my filtration rate is 67. My potassium is normal and my phosphates are low. Who would have thought that low phosphates could make me so happy? I am eating phosphate rich foods every single day, but my phosphates remain low. It’s astounding, really it is. I’m not on any kind of special diet whatsoever. My Dr just told me to have a normal well balanced diet. Now that for me includes Avocado on a daily basis. I drink coffee, eat chocolate, bananas, potatoes, whatever I can think of, I eat. Without feeling like I’ve just done myself an injury. It truly is such an amazing feeling. I keep waiting for the novelty to wear off, but it just doesn’t. I’m certainly not complaining about that, lemme tell ya!
It’s been up and down with my anti-rejection drugs, but I was told that was perfectly normal. My one drug gets adjusted both up and down depending on how I respond to it. Currently I’m on a lesser dosage, so I’m so happy about that. The cortisone has been tapered off every 2 weeks or so, also depending on how my loods look. I’m currently on 12.5mg daily, but I started on 60mg daily. that was pretty rough!
When I got home everyone asked how I felt being home. Was I just so happy to be with my Husband and boys? It must be so good to be back in my environmen. How does it feel to not dialyse every single day? I must feel so happy and pleased? YES! Off course I felt all of that. I love being home, I’m such a home body, I love being here for Pete and the boys. And not dialysing everyday? I don’t even have to tell anyone what a relief THAT is!
But in all honesty? The overriding feeling I had when I came home? H-U-N-G-R-Y!!!!!!!!!!!!!! All I did for the first 2 weeks at home was EAT!! I ate everything that wasn’t nailed down. Pete thought that was just the funniest thing he ever did see! I think he got worried at ne stage. He would see me eating AGAIN and say “Honey? Eating again? Aren’t you still from lunch?” HA! lunch was at least 45mins ago, I’m starving!!!!!
That’s how it would go for 2 weeks, then I decided ok, enough of this eating Monster stuff. And it was pretty difficlt in the beginning, but luckily the Dr lowered my Cortisone dosage every 2 weeks, so it got easier to eat less. But I really enjoyed it, eating whatever I wanted was great.
Cortisone is pretty hectic stuff. I would shake like a criminal in police custody, had hectic moonface, and mood swings. Wow. I’m so glad to be over most of those side effects now. I’m not a Cortisone fan, I don’t know anyone who is. I will be on a low dosage of Cortisone for he rest of my life. But I really don’t mind, it’s one of 3 anti-rejection drugs I happily take. My Sister’s kidney is such a precious gift, I will do whatever I need to keep it safe. I don’t want her to be without a kidney for no reason.
She said to me just before the Transplant that if anything happens and the kidney doesn’t take, at least we tried. Gosh, she really is amazing. I would have been devastated for both of us if it didn’t take. Thank God it was hugely successful. And we have both recovered really well. I’m still so proud of my Sister.
i can n ow look forward to some cool holidays with the family and not wondering how we will fit that big ass dialysis machine and all the glucose solution in the car. That was a nightmare. Best of all, no rushing back at a certain time to dialyse! That’s just awesome!
“If you think sunshine brings you happiness, then you haven’t danced in the rain.” -Unknown