So last week I wrote a looong post about our transplant journey, with many ups and downs along the way. Today is all about our hospital stay. As I said last week, we had fun and games on Tuesday while we waited for our transplant. We actually had a blast, we weren’t nervous at all, that came later! Pete and Stian got hungry so we sent them for breakfast, and we were quite jealous that they could eat! We were starving!
In ICU I wasn’t very mobile, although they forced me into physio (HATED) it!!!! Was sooo bloody painful. My Sister was in the big general ICU area and I was in isolation. I really hoped they would put us together but they couldn’t, I had to be in isolation. But she visited me often, I went to see her after 3 days. We visited each other quite often. She would come to my room and I would go to her bed, both of us doubled over with pain. It was quite a sight for sore eyes! But as the days passed we walked more upright.
This was when things became real, suddenly the porter arrives to whisk her away. This was a difficult moment for me. I couldn’t’ help feeling guilty, if I had normal kidney function my Sister would not need to go through with it. I knew what she was in for. Thank goodness she didn’t have the massive surgery through her back, but believe me, she was in a world of pain.
It’s so good to be on the other side of this.
I was pretty cooked at that point!! So nice I must say, I felt very mellow and sleepy.
I had to take my first set of anti-rejection drugs before the transplant. I was worried that I would have side effects, but luckily I didn’t. I had no idea what I was taking, now I can do this with my eyes closed.
This was the day after the transplant, I felt like the Michelin man with all that water in me!
2 days after the transplant, I was feeling heaps better. The dreaded disequilibrium had dissipated somewhat, I still feeling rather ill here, but getting better.
The staff in ICU were amazing, they really did their best for us, going up and down seeing how we were doing and reporting back, so sweet. Apart from my Sister’s first Sister who was a right bitch to her, awful bloody individual, and my last Sister, also quite an awful person, she really should choose another profession. But for the rest, we had lovely staff.
Aaaaah, good ol’ physio therapy. Letta was THE most patient person with me. I did NOT want to move. I just wanted to be left alone. And she explained that it was not gonna happen. So with tears and fighting with her I relented. Luckily my Mom had arrived by that time and she could bring a bit of balance to the situation, she asked Letta to give me some time to settle a bit and to come back later. I did make a new friend with one of the ICU Drs, Liam, he came and patiently explained why physio was needed, and after that I felt more relaxed about it. We had to do physio twice a day, hectic stuff.
Every now and then I would get a little break from all the wires, it was such a relief to get unhooked, I could go and see my Sister or go to the loo, quite a novelty for me at that stage!
Eventually in the afternoon of day 4 my Sister got moved to Highcare, she still wasn’t weeing, so they had to monitor her closely. I was freaking out at that point! But she seemed quite calm, probably just to not freak me out as I know her to do. I begged and pleaded to be sent to the ward. Eventually the Drs caved in and sent me on my merry way after 5 days in ICU. If I left it up to them they would have kept me there for 7 days.
We really had a blast up stairs in the Transplant unit. We visited each other quite often. We went walking all over the hospital and the car park to get some mobility back.
When Elize got discharched and went home I really missed her. It was an honour and a privilege to share this with her and spent 8 days together and recovering from the surgery. She truly is such an amazing, selfless and generous person. Few people would willingly go through major surgery for someone else. She is my Hero.
“There is no better friend than a Sister, and there is no better Sister than you. “
“A Sister is a gift to the heart, a friend to the Spirit, a Golden thread to the meaning of life.”
“A Sister is a Forever Friend.”